for HD Chorea in Adults

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What is the impact
of HD chorea?

Chorea is one of the most visible symptoms of HD, but it can be treated

Huntington’s disease (HD) is a genetic brain disorder that causes an abnormal increase in the release of dopamine. Dopamine is a brain chemical responsible for movement, and increased amounts in the brain can cause chorea.

Chorea is a symptom of HD that causes uncontrollable body movement. Chorea can be a burden to people with HD and those who care for them, impacting daily life and relationships. Care partners reported chorea as the most impactful symptom of HD.

Find out how to treat HD chorea
James, a real person living with HD chorea and Sue, a real HD chorea care partner.
Find out how to treat HD chorea

What HD chorea
signs look like:

  • Flicking the fingers
  • Flailing arms or legs
  • Shrugging shoulders
  • Grimacing
  • Twisting or jerking
  • Irregular eye movements or blinking

These movements can be mild
to severe and may worsen
with stress. Over time, these movements cause a loss of independence.

These movements can be mild to severe and may worsen with stress. Over time, these movements cause a loss of independence.

How HD chorea can
impact daily life:

  • Make walking and
    climbing stairs difficult

  • Affect your ability to
    brush teeth or bathe

  • Make getting dressed
    challenging

  • Affect your ability to eat or chew

  • Make it difficult to
    speak clearly

The HD chorea affected my independence because of the movements in my fingers. It made it hard to use a keyboard, I was no longer able to type an email on a computer.

— JAMES, living with Huntington's disease (HD) chorea

Get the conversation going

Reduce the movements of HD chorea and their impact on your
day-to-day living. Use the Appointment Preparation Guide to
help start the conversation.

Get the guide