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Make the most of moments with fewer movements.^1-3

Navigating life with HD chorea can take some careful planning to make symptom progression more manageable.⁴

Assembling your HD chorea
care team⁵

Ask your primary care doctor and/or neurologist to refer you to other healthcare professionals who can help manage the various symptoms of Huntington’s disease. A strong healthcare support network for HD chorea may include a:

Physical therapist to assist in improving strength, mobility, balance, and function.
Occupational therapist to suggest methods that may improve your ability to perform everyday tasks.
Speech pathologist to address difficulties with speaking and communication.
Nutritionist or dietician to assist with diet, fluctuations in weight, and swallowing problems.
Psychiatrist or psychologist who can treat mental health conditions associated with HD, such as depression.
Therapist or counselor who can help everyone in your HD family manage stress and intense emotions.

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Making your home
HD chorea friendly

People with HD chorea may have difficulty with everyday activities such as eating, drinking, getting dressed and maintaining personal hygiene. Small adjustments throughout the home can improve safety and help lessen the impact HD chorea has on day-to-day tasks.^5,6

In the kitchen⁵:

Use durable plates, bowls, and non-stemmed glassware
Use utensils with large handles
Use non-skid placemats
to prevent dishes from moving

In the bathroom⁵:

Place a non-skid mat in the shower or bathtub
Get a chair or bench for use in the shower
Consider using an
electronic toothbrush
Install safety bars in the shower and by the toilet
Avoid using bar soap as it's slippery and easy to drop

In the living room
and bedroom⁵:

Remove rugs or thick carpets to avoid tripping
Ensure chairs have armrests and high backs
Eliminate unnecessary furniture and ensure rooms are well-lit

Tips for healthy eating

The involuntary movements of HD chorea burn a considerable amount of calories—which may lead to a struggle to maintain a healthy weight. Incorporating nutrient-rich, calorie-dense foods may be beneficial to those with HD chorea.⁷

Add healthy fats

Avocados, nut butters such as peanut, almond, or cashew, and sesame tahini make great additions to any meal. Walnut, flax seed, avocado, and olive oils are also sources of healthy fats.⁷

Choose colorful foods^7,8:

Red fruits and vegetables like tomatoes, watermelon, and pink grapefruit contain heart-healthy lycopene that may reduce inflammation.

Purple fruits such as blackberries, grapes, and prunes contain anthocyanin, an antioxidant that supports heart health.

Orange foods such as carrots, mangoes, and sweet potatoes are rich in carotenoids, which support immunity.

Green vegetables like broccoli, cabbage, and brussels sprouts contain isothiocyanates, which boost liver function.

Create a healthy eating environment

Schedule mealtimes, keep conversations simple, and remove distractions such as the TV or radio. Allow plenty of time for those with HD chorea to finish their meals.⁷

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Make the most of moments with fewer movements.1-3

Assembling your HD chorea care team5

Making your home HD chorea friendly