People with Huntington’s disease (HD) chorea may find it difficult to do everyday things like going to the bathroom, taking a walk, or dressing themselves without help. HD chorea may also make it difficult to talk, chew, and swallow.1,2

In a 2016 survey, care partners reported chorea as the most impactful symptom of HD. As HD chorea progresses, people experiencing movements may have pain, and may become increasingly dependent on their care partners for help. They often find they can no longer drive a car or work outside the home.1-3

Does HD chorea affect these daily activities?1

Pouring a beverage or drinking Pouring a beverage or drinking Pouring a beverage or drinking Pouring a beverage or drinking

Pouring a beverage
or drinking?

Brushing your teeth Brushing your teeth Brushing your teeth Brushing your teeth

Brushing
your
teeth?

Trouble bathing Trouble bathing Trouble bathing Trouble bathing

Bathing?

Forming words and/or speaking clearly Forming words and/or speaking clearly Forming words and/or speaking clearly Forming words and/or speaking clearly

Forming words and/or Speaking clearly
due to chorea?

Getting dressed Getting dressed Getting dressed Getting dressed

Getting
dressed?

Person swallowing or eating Person swallowing or eating Person swallowing or eating Person swallowing or eating

Swallowing
or eating?

If you answered yes to one or more of these questions, you may want to talk to your doctor about the impact of HD chorea and how you can manage it.

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References: 1. Nance M, Paulsen JS, Rosenblatt A, Wheelock V. A physician’s guide to the management of Huntington’s disease. 3rd ed. Huntington’s Disease Society of America website. http://hdsa.org/wp-content/uploads/2015/03/PhysiciansGuide_3rd-Edition.pdf. Published 2011. Accessed September 23, 2019. 2. A caregiver's guide to Huntington's Disease. Huntington’s Disease Society of America website. http://hdsa.org/wp-content/uploads/2015/03/A-Caregivers-Guide-to-HD.pdf. Published March 2011. Accessed September 23, 2019. 3. Simpson JA, Lovecky D, Kogan J, Vetter LA, Yohrling GJ. Survey of the Huntington’s disease patient and caregiver community reveals most impactful symptoms and treatment needs. J Huntingtons Dis. 2016;5(4):395-403.