My Guide

Thank you for completing the HD doctor discussion guide

Take a moment to review the summary of your answers below with a care partner, or other family member or friend. If you would like to change a response, hit the “start over” button. When you’re ready, you can access a copy of your guide to take to your next appointment by either emailing it to yourself or downloading and printing it.

Question 1:

Which of the following involuntary movements are you experiencing?1,3

Select all that apply:

Question 2:

How often do you experience these involuntary movements?1-3

Please select one:

Question 3:

Do you have trouble with any of these daily activities?2

Select all that apply:

Question 4:

Does someone help assist you with everyday tasks?2

Please select one:

Question 5:

Has a loved one or care partner noticed your unintentional movements?1,3

Please select one:

Don’t forget to print or email your guide and take it to your next appointment.

Whether it’s in person or through telemedicine, start a conversation about your Huntington's chorea symptoms and treatment with your doctor.

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References: 1. Huntington’s disease. Hope through research. National Institute of Neurological Disorders and Stroke. Accessed December 16, 2020. https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Hope-Through-Research/Huntingtons-Disease-Hope-Through 2. Burgess JC, Davis B, Fogarty E, et al. Caregiver Guide for Mid to Late Stage Huntington’s Disease: For Long-Term Care Facilities and In-Home Care Agencies. Huntington’s Disease Society of America; 2014. Accessed December 16, 2020. http://hdsa.org/wp-content/uploads/2015/04/CaregiverGuide_Mid_Late_StageHD.pdf 3. Caron NS, Wright GEB, Hayden MR. Huntington disease: Synonym: Huntington chorea. In: Adam MP, Ardinger HH, Pagon RA, Wallace SE. GeneReviews. University of Washington, Seattle; 1993-2020.