My Guide

Thank you for completing the HD doctor discussion guide

Take a moment to review the summary of your answers below with a care partner, or other family member or friend. If you would like to change a response, hit the “start over” button. When you’re ready, you can access a copy of your guide to take to your next appointment by either emailing it to yourself or downloading and printing it.

Question 1:

Which of the following involuntary movements are you experiencing?1,3

Select all that apply:

Question 2:

How often do you experience these involuntary movements?1-3

Please select one:

Question 3:

Do you have trouble with any of these daily activities?2

Select all that apply:

Question 4:

Does someone help assist you with everyday tasks?2

Please select one:

Question 5:

Has a loved one or care partner noticed your unintentional movements?1,3

Please select one:

Don’t forget to print or email your guide and take it to your next appointment.

Whether it’s in person or through telemedicine, start a conversation about your Huntington's chorea symptoms and treatment with your doctor.



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References: 1. Huntington’s disease. Hope through research. National Institute of Neurological Disorders and Stroke. Accessed December 16, 2020. 2. Burgess JC, Davis B, Fogarty E, et al. Caregiver Guide for Mid to Late Stage Huntington’s Disease: For Long-Term Care Facilities and In-Home Care Agencies. Huntington’s Disease Society of America; 2014. Accessed December 16, 2020. 3. Caron NS, Wright GEB, Hayden MR. Huntington disease: Synonym: Huntington chorea. In: Adam MP, Ardinger HH, Pagon RA, Wallace SE. GeneReviews. University of Washington, Seattle; 1993-2020.